Hachette India

What You Really Want to Know About Life with Dementia

Karen Harrison Harrison Dening

Hilda Hayo

Christine Reddall

A family-led vision of what carers of people with dementia need and want to know. Supporting families and carers in their day-to-day life with dementia, this unique resource combines real stories from families with expert responses and advice for specific issues and concerns.

This resource is based on the real stories and real questions brought to the Admiral Nurse Dementia Helpline, peer support groups and clinical networks. Including questions around diagnosis, peer support, balancing risks, care transitions and end of life planning, the chapters are devised to support you, and give you the tools to live better, when dementia enters your life.

Karen Harrison Harrison Dening

Dr Karen Harrison Dening is Head of Research and Publications at Dementia UK, home of Admiral Nursing. She has years of expertise in palliative and end-of-life care, advance care planning and case management in dementia. Her previous books with Jessica Kingsley Publishers are Evidence-Based Practice in Dementia for Nurses and Nursing Students, and Dementia, Culture and Ethnicity: Issues for All.

Dr Hilda Hayo became Chief Admiral Nurse and CEO for Dementia UK in 2013. As a dual registered nurse, she has held senior positions in clinical services, hospital management and higher education.

Christine Reddall has worked in many different settings. As a former community Macmillan Nurse, realising that people with dementia and those with learning disabilities rarely accessed good palliative and end-of-life care, she concentrated her efforts in enabling this. Christine has used her experience gained from both professional and personal perspective to help promote awareness of young dementias.

Hilda Hayo

Hilda Hayo is Chief Admiral Nurse/CEO at Dementia UK. She set up the Younger People with Dementia Team in Northamptonshire and is a founding member of the Forget Me Nots young onset dementia social group. Alison Ward is a health and social care researcher and is also a founding member of the Forget Me Nots. Jacqueline Parkes is a mental health nurse, Professor of Applied Mental Health, Lead for Dementia Research at the University of Northampton, and Chair of the Dementia Friendly Community of Practice (UoN).